Updated: Feb 13, 2020
The Kaiser-Din Foundation will proudly support the 'Golf for a Cure' tournament on September 24 at the Riverton Country Club. The tournament will help fun research for gene therapy research that is underway at the University of Sheffield. Head Professional Kevin Duffy’s daughter, Molly, is affected by an ultra-rare, neuro-degenerative disease called Hereditary Spastic Paraplegia type 47, or SPG47. This disease is currently known to affect fewer than 10 children in the United States. SPG47 presents with low muscle tone and cognitive delays and progresses rapidly to muscle spasticity, robbing these children of the ability to walk and other milestones at a young age.
The Duffy family, along with one of the other families impacted by SPG47, founded the Cure SPG47 501(c)3 non-profit organization in 2016. The purpose of this organization is to develop and fund research projects that provide hope for a cure for children affected by SPG47. They have surrounded themselves with a great team of doctors and researchers and already have two research projects that are very promising. Cure SPG47 desperately needs the funding to keep the research moving forward.